Darren Parkinson from Bradford got Covid in 2021 and five years later struggles to leave the house.
Gabby Rudge-Cox, 42, says long Covid has "robbed her of a future".
Baroness Hallett has recommended capacity be increased in urgent and emergency care in Wales.
The South West MS Therapy Centre near Exeter says it needs to find new premises.
The event at St James's University Hospital also recognises those living with long Covid.
Patients and scientists appeal for government help in moving research forward.
The NHS in the North East and Cumbria is closing its last dedicated long Covid clinics this month.
NHS Highland plans to provide the help as part of its long Covid support service.
The £1.1m Rosetta Stone study hopes to make a breakthrough by comparing both conditions.