The boy, who cannot be named for legal reasons, is from Berkshire but is cared for in Surrey.
Sunderland's Coroner says she fears future deaths may occur unless issues are addressed.
An NHS trust in Surrey and Hampshire is the first European centre for the clinical trial.
Parents are being urged to attend meetings linked to a major Sussex maternity review.
A mum says her daughter, 28, was in an A&E corridor with a drip on a model skeleton as all beds were taken.
The CQC says it has requested an action plan from trust bosses to address its concerns.
Josh Babarinde says a number of serving and former members of staff have contacted his office.
An NHS trust says demand for dementia inpatient beds has reduced in the region.
Researchers said the tools - which record consultations - could miss vital things like a patient's facial expressions or emotional state.
